F*** It, I Have a Brain Injury
Two guys with brain injuries share the lived experience in collaboration with a speech/language pathologist. Co-hosts Ken and Jesse interview peers about their experiences following Acquired Brain Injury (ABI) and healthcare professionals and friends and family members who spend time with people following ABI. Melissa Capo, M.S., CCC/SLP, along with graduate students, supports the co-hosts in the planning, interviewing and review of podcast episodes. An audio engineer professional and his students collaborate with the team for editing and audio production. This work represents project-oriented intervention in ABI rehabilitation. *The first season was recorded at The College of St. Rose in Albany, NY, USA For information, questions or to request to be a guest on the show, contact Melissa Capo @effitpodcast0@gmail.com
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F*** It, I Have a Brain Injury
Ken and Jesse, two friends with acquired brain injuries, interview peers and professionals and share their own lived experiences following ABI.
Episodes
3 hours ago
3 hours ago
In Part 2 of this conversation, Kim Verner discusses different types of guardianships, including representative payees and how caregivers can help adults with Acquired Brain Injury maintain independence in a supportive environment.
*Note: This interview was recorded in Albany, NY, USA in April 2024.
Tuesday Apr 15, 2025
Tuesday Apr 15, 2025
In Part 1 of this 2 part episode, the guys interview Elder Law and Disability Attorney, Kim Verner. She describes how to set up a Special Needs Trust and the important aspects of estate planning following Acquired Brain Injury.
*Note: This interview was recorded in Albany, NY in April 2024.
Tuesday Feb 18, 2025
Tuesday Feb 18, 2025
In this episode, Jesse interviews Ken about his recent experience moving to a new home. They separate physical/mobility challenges associated with hemiparesis from cognitive challenges after ABI. Cognitive strategies include labeling drawers and cabinets and asking family to help organize. Physical accommodations include moving appliances and fixtures on the strong side, using a rolling cutting board, installing a cut tub, using a rug over hardwood floors and having family help pack and unpack. And remember, even with more room around the bed it still may take a hockey game’s time to put on a fitted sheet.
“Anybody going through what I’m going through, it will work out, it just takes time”
-Ken
Friday Dec 13, 2024
Friday Dec 13, 2024
In this episode, Allison discusses overcoming shame and obstacles following her ABI. She talks about her experience with aphasia and acquiring and succeeding in a job. The group talks about fishing and making friends after brain injury.
Tuesday Dec 03, 2024
Tuesday Dec 03, 2024
Ken and Jesse talk with Molly and share their tips on managing home health aids. The group shares attributes to look for in an aid who will help foster independence and how to spot a not-so-good one. They all share their worst aid stories- one stinks worse than the others.
*Episode transcript available.
Tuesday Nov 19, 2024
Tuesday Nov 19, 2024
*Note: this episode was recorded in December 2023 when The College of St. Rose in Albany, NY, USA, had just announced it was closing.*
In the conversation: Jesse, Ken and Melissa Capo, speech/language pathologist.
Jesse interviews Ken about his experience with aphasia (an acquired communication disorder that can result from brain injury including stroke). Ken describes strategies that work for him and assures listeners that "anybody that says it doesn't get better is lying, cause it does." He also describes the importance of being comfortable in your own skin.
Resources:
National Aphasia Association
Life Participation Approach to Aphasia
Aphasia Institute (Canada)
Tuesday Nov 19, 2024
Tuesday Nov 19, 2024
In this introductory episode, Ken and Jesse describe the purpose of the podcast and provide background information about their Acquired Brain Injuries (ABI). Ken describes his stroke and his interest before and after. Jesse describes the conditions around his anoxic injury and his challenges since. He also describes his current interests.